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DTSTART;TZID=America/New_York:20260926T110000
DTEND;TZID=America/New_York:20260926T150000
DTSTAMP:20260818T044359Z
CREATED:20260818T044257Z
LAST-MODIFIED:20260818T044359Z
UID:10000719-1790420400-1790434800@usmvmcgastate.com
SUMMARY:OH-8 Cruise In
DESCRIPTION:A Brother asked during a state meeting to make awareness of a disease his grandson (Jax) was recently diagnosed with called Sanfilippo. As a state we are doing just that and if we can raise a few dollars along the way then hey\, why not!\nWe have planned a day for all to come. Details of the event are on the attached flyer.  Date is 26 Sept 2026 at the Piqua OH VFW. If you can make it on a short notice\, what a blessing\, if not totally understand! Just do one solid and spread the word about this horrible disease! I’ve listed out some details on what Sanfilippo below. There is also a site called CureJax.org \, if you want to learn about the family’s story. The more this disease is made aware of the better chance of getting funding for a cure and again\, that’s what this message is all about AWARENESS!\nSanfilippo syndrome\, or Mucopolysaccharidosis type III (MPS III)\, is a rare\, fatal genetic brain disease often called “childhood dementia”. It stops the body from breaking down a sugar molecule called heparan sulfate\, which builds up and destroys cells in the brain and nervous system. There is currently no cure. \n\n\n\nCauses and Types\n\n\n\n\n\nCaused by a flawed gene passed down from both parents (autosomal recessive).\n\n\n\n\nDivided into four main types (A\, B\, C\, and D) based on which missing enzyme the body lacks.\n\n\n\n\nType A is usually the most severe and fast-moving form.\n\n\n\n\n\n\nSigns and Symptoms\n\n\n\n\n\nChildren look healthy at birth and grow normally for the first one to two years.\n\n\n\n\nSpeech and developmental delays show up between ages two and six.\n\n\n\n\nExtreme hyperactivity\, sleep problems\, and behaviors similar to autism.\n\n\n\n\nGradual loss of speech\, movement\, and mental skills.\n\n\n\n\nMost children pass away during their early teens​\n\nOH-8 Event Downloadable Flyer
URL:https://usmvmcgastate.com/calendar/oh-8-cruise-in/
LOCATION:PIQUA VFW POST 4874\, 8756 N COUNTY RD 25A\, PIQUA\, OH\, 45356\, United States
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DTSTART;TZID=America/New_York:20260926T120000
DTEND;TZID=America/New_York:20260926T140000
DTSTAMP:20260819T175156Z
CREATED:20260819T175156Z
LAST-MODIFIED:20260819T175156Z
UID:10000720-1790424000-1790431200@usmvmcgastate.com
SUMMARY:WVA-2 Blanket Drive
DESCRIPTION:On 26 September @1200\, WVA-2 will be feeding the veteran clients at the Martinsburg VA. My Chapter will be providing food and drinks. We ask that any Chapter visiting\, please bring new blankets.  We have been told by the Director of Volunteer Services that this is a need.\nAddress:\n510 Butler Avenue\nMartinsburg\, WV 25405
URL:https://usmvmcgastate.com/calendar/wva-2-blanket-drive/
LOCATION:Martinsburg VA Medical Center\, 510 Butler Avenue\, Martinsburg\, WV\, 25405\, United States
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DTSTART;TZID=America/New_York:20260926T120000
DTEND;TZID=America/New_York:20260926T235900
DTSTAMP:20260809T203606Z
CREATED:20260119T181140Z
LAST-MODIFIED:20260809T203606Z
UID:10000561-1790424000-1790467140@usmvmcgastate.com
SUMMARY:GA 2 Annual
DESCRIPTION:GA 2 will be having our annual Sept 26 2026.
URL:https://usmvmcgastate.com/calendar/ga-2-annual/
LOCATION:GA-2 Clubhouse\, 102 N. 2nd ave\, Chatsworth\, 30705\, United States
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